Tuesday, February 20, 2007

A true Friend


So as you know I have been writing on and off about my daughters fight and my struggles to understand and to assist her in her fight.
Well I found out this week that a VERY good friend of mine has epilepsy has for over 40 years! WOW, a fountain of knowledge, someone I can trust to ask questions on medications, on seizures etc. And the best part is I can truly call her a friend and she will not sugar coat her answers for me like the doctors have.

As you can see from the picture on the right, Hannah had to get tested in regards to the seizures again. (what a mess to get out of her hair) But we all lived through it, she was so brave, she wore them to school, friends asked questions but to my surprise no one picked on her in regards to them or the headband she wore. She was so scared about the other students, but it did teach us and her a valuable lesson. Strength is from within!

I am proud of you Hannah!

Thursday, January 25, 2007

Canadian Drug Prices

Let me start by saying how much I am against bring in foreign labor into the USA to do jobs that companies can find skilled qualified labor for here in the USA at a good price point but wont use do to a 50% cut in labor cost.

That being said I was told about Canadian on-line pharmacies this week.
Now the above all taken into account the more reading I did the more I thought of getting generic Kepra and saving $$$ off of the monthly bill.

My question is: Is it worth it? Is Generic worth it? is $100 per month worth it?

I ask becaus I seriously do not know, i am not sure the ramifications of going generic and I can find little if no research inregards to generic Kepra.

Friday, January 5, 2007

Backing the fight with more then words

Ever since Hannah has been diagnosed with this curable disease I have been trying to learn and to understand it, today I am announcing my intentions to match dollar for dollar any donations from family and friends along with my own personal starters check to the fight. At the end of 2007 I & Hannah will hand over a check to the epilepsy center in Hannah's name.

Please join us in helping to learn more and to cure Epilepsy.

Thank you,

Thursday, January 4, 2007

A search for understanding

I went to a site this week, http://www.outoftheshadows.com/
I was very impressed and had a feeling of finally someone knows what I am personally going through with my daughter!

It was unique as I kind of like the ladies band as well. she seems to be a very straight forward woman who has a story to tell and we need to tell the stories we see every day with our loved ones. I look at Hannah everyday and hope and pray that she will be a normal little girl with everything she dreams about being in her reach.

Understanding Epilepsy The first step to ending fear and stigma is to learn more about epilepsy and seizures. Learning seizure first aid could help you help a friend. I know Hannah's are VERY mild but she has MANY going on all at the same time one right after another, but what is weird is they will grow and she zones out and then we know.

Tuesday, January 2, 2007

A long night

Does it ever seem that when they tell you the medication your child is taking is going to actually make them this, or that, well Kepra is supposed to make them more focused on school work etc. Hannah was a very strong student now she never wants to do her work is more likely to be in front of a TV rather then doing the school work she used to love.

Maybe it is me, maybe it is me seeing something that is not there. But do you see changes in your children as well?

Wednesday, December 27, 2006

Happy Holidays

Happy Holidays to everyone.
As you know this is a joyus time of the year with all the twinkling lights and all the commotion around us it is easy to forget about the problems in our world, that is until those twinkling lights set your daughter into a blanked stared seizure. It is hard not to see the seizures with all those lights around us.
Be brave be strong and don't take away the lights or the festivities around them but be causcious, let them be kids, let them be the joy you see this time of the year, let them enjoy all the lights, the gifts and the fun of the season, it is for them after all.

Tuesday, December 26, 2006

Hannahs Cure

I have the great honor of being the father of Hannah Carter a strong courageous fighter of Epilepsy. Hannah is a bright strong little dancer who along with her sister are the apple of our eyes.
it has been over 1 year since we had the first seizure, WOW.......until you are a part of it it is something you can never believe. The pain and horror that shot through us that Sunday Church morning is nothing you will never know unless you have experienced it.


During the time of this on-going fight, Hannah's mother(Jen) Her Sister (Lila) and I have been through many changes, many growth efforts in our education and to a lot of appointments to maintain a quality of life we once knew with out drugs and needles.

This blog will be a road trip with Hannah, the many members of our family, our company which was begun to assist in finding relief, education and cures for this disease.

We want all epilepsy survivors their families and friends to talk to us and others in this blog. Lets fight for a cure.