Really bad tests but great results

Poor Hannah, when it rains it pours!

Hannah has been having a lot of infections and bladder issues, as such we have been concerned if it has had something to do with her medication or her situation.

Well the medication was not the issue, as I thought it was a mental state, not a chemical or physical.

That being said I practically cried when I heard what they had to do. Jen was AWESOME in assisting 4 nurses to hold her down so they could insert a catheter to look at her kidney's. At the end of the tests she finally collapsed into Jen's arms exhausted from fighting to get up.
All results were negative which is great, and she has gone 8 straight days with out a night time accident.

Great job Hannah!

Great Day & Dinner

I had the great fortune of attending dinner at P.F. Chang's with Hannah & her Mother last evening. I had a wonderful time but even more important I got to watch and interact with a soon to be 8 year old who is turning into such a lady.

She was using her manners, she asked for tea! Hot tea from an 8 year old, she tried it and did not like at first, but it is amazing what sugar & lemon can do to the taste!

Oh and for such a skinny girl she ate the whole adult dinner order. She has not lost her appetite!

No seizures today after Sundays issues. Today was a great day for my young lady!

Bad day

Hannah had a tough day on Sunday. She went to a birthday party for one of her friends, so they go on a ride and it has all these blinking lights and a flat panel monitor her mother did not see inside the ride. 3 trips later and all the lights and Hannah has a headache.

It lasted a little longer then usual this time, not sure if it was from the intensity of the lights or what but I am doing research to see if there is a cause and effect from the stimuli.

4 hours later and a little relax time and she was good to go........

Outburst controlled

Well Hannah had a outburst this weekend while her mother was in Washington DC. I noticed if I nipped it in the bud ASAP and not let her rant and rave like a crazy girl I am able to control her emotions.

Scenario:
She is standing on her bed yelling at her sister turning red and just screaming.
So I run in see this and "Calmly" say OK I am here you need to sit down and talk to me like a gig girl and not scream like a baby. I am here to deal with Lila (her annoying little sister, as she calls her) if she is being naughty.
So she immediately sat down we calmly talked and the rest of the day went on.
What did I learn, calm rational conversation and the world moves on!

A true Friend

So as you know I have been writing on and off about my daughters fight and my struggles to understand and to assist her in her fight.
Well I found out this week that a VERY good friend of mine has epilepsy has for over 40 years! WOW, a fountain of knowledge, someone I can trust to ask questions on medications, on seizures etc. And the best part is I can truly call her a friend and she will not sugar coat her answers for me like the doctors have.

As you can see from the picture on the right, Hannah had to get tested in regards to the seizures again. (what a mess to get out of her hair) But we all lived through it, she was so brave, she wore them to school, friends asked questions but to my surprise no one picked on her in regards to them or the headband she wore. She was so scared about the other students, but it did teach us and her a valuable lesson. Strength is from within!

I am proud of you Hannah!

Canadian Drug Prices

Let me start by saying how much I am against bring in foreign labor into the USA to do jobs that companies can find skilled qualified labor for here in the USA at a good price point but wont use do to a 50% cut in labor cost.

That being said I was told about Canadian on-line pharmacies this week.
Now the above all taken into account the more reading I did the more I thought of getting generic Kepra and saving $$$ off of the monthly bill.

My question is: Is it worth it? Is Generic worth it? is $100 per month worth it?

I ask becaus I seriously do not know, i am not sure the ramifications of going generic and I can find little if no research inregards to generic Kepra.

Backing the fight with more then words

Ever since Hannah has been diagnosed with this curable disease I have been trying to learn and to understand it, today I am announcing my intentions to match dollar for dollar any donations from family and friends along with my own personal starters check to the fight. At the end of 2007 I & Hannah will hand over a check to the epilepsy center in Hannah's name.

Please join us in helping to learn more and to cure Epilepsy.

Thank you,

A search for understanding

I went to a site this week, http://www.outoftheshadows.com/
I was very impressed and had a feeling of finally someone knows what I am personally going through with my daughter!

It was unique as I kind of like the ladies band as well. she seems to be a very straight forward woman who has a story to tell and we need to tell the stories we see every day with our loved ones. I look at Hannah everyday and hope and pray that she will be a normal little girl with everything she dreams about being in her reach.

The first step to ending fear and stigma is to learn more about epilepsy and seizures. Learning seizure first aid could help you help a friend. I know Hannah's are VERY mild but she has MANY going on all at the same time one right after another, but what is weird is they will grow and she zones out and then we know.

A long night

Does it ever seem that when they tell you the medication your child is taking is going to actually make them this, or that, well Kepra is supposed to make them more focused on school work etc. Hannah was a very strong student now she never wants to do her work is more likely to be in front of a TV rather then doing the school work she used to love.

Maybe it is me, maybe it is me seeing something that is not there. But do you see changes in your children as well?