Really bad tests but great results

Poor Hannah, when it rains it pours!

Hannah has been having a lot of infections and bladder issues, as such we have been concerned if it has had something to do with her medication or her situation.

Well the medication was not the issue, as I thought it was a mental state, not a chemical or physical.

That being said I practically cried when I heard what they had to do. Jen was AWESOME in assisting 4 nurses to hold her down so they could insert a catheter to look at her kidney's. At the end of the tests she finally collapsed into Jen's arms exhausted from fighting to get up.
All results were negative which is great, and she has gone 8 straight days with out a night time accident.

Great job Hannah!

Great Day & Dinner

I had the great fortune of attending dinner at P.F. Chang's with Hannah & her Mother last evening. I had a wonderful time but even more important I got to watch and interact with a soon to be 8 year old who is turning into such a lady.

She was using her manners, she asked for tea! Hot tea from an 8 year old, she tried it and did not like at first, but it is amazing what sugar & lemon can do to the taste!

Oh and for such a skinny girl she ate the whole adult dinner order. She has not lost her appetite!

No seizures today after Sundays issues. Today was a great day for my young lady!

Bad day

Hannah had a tough day on Sunday. She went to a birthday party for one of her friends, so they go on a ride and it has all these blinking lights and a flat panel monitor her mother did not see inside the ride. 3 trips later and all the lights and Hannah has a headache.

It lasted a little longer then usual this time, not sure if it was from the intensity of the lights or what but I am doing research to see if there is a cause and effect from the stimuli.

4 hours later and a little relax time and she was good to go........